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Hello everyone, I hope your day has started relatively well!

So I can't find a thread or much information on this topic and wondered what your thoughts were.

My 21 YO DD has never had an easy time with her periods, last year we went through ultrasounds, hormone testing, the works and there is "nothing wrong" with her; however, she suffers dreadfully, leaving her in bed for three days at a time perhaps once or twice a month.

Does anyone else have any experience, thought, advice on this?

I will be following this thread with interest. My daughter is 19 and has never had regular periods, going many months without one (up to 12 months). She has had all the tests and was told everything appeared normal. The GP and OBGyn has suggested that the irregularity could be due to her anxiety and how her body reacts to the stress. They want her to try birth control but we are hesitant to add yet another chemical into the mix. I am curious to see what others report on this subject.

Daughter 16 severe PMS I have been tracking in relation to behavior/escalation. Gynecologist said birth control may help the emotional issues to a degree (yaz) as many with PMDD find great relief. She would not prescribe without consult with Psychiatrist, as some bc interferes with psych meds and vise versa. Last Psychiatrist visit she referred back to Gyne not seeing an issue with trying it. I also am hesitant to introduce strong meds at this point and await a second opinion from new psychiatrist. In my mom opinion regardless of the cramps/heavy bleeding issues, daughter absolutely escalates while in PMS stage. Last month she got her period the day after admitted inpatient. Great thread, as there is not much out there on this. Thanks so much!

our d did get extra angry around that time of month  You could ask drs gyn about endrometriosis  .  It sounds a lot like the symtoms you all have described .

I echo the possibility of endometriosis. My sister had problems from early on, but it wasn't until I was in my 40s and have g surgery for fibroid tumors that my doctor discovered I also had endometriosis. It isn't always easily diagnosed.

Thank you - yes, we checked for endometriosis too...

Please keep giving insights - this may be something that we need to look at with our daughters - a little beyond the usual PMS stuff. I have always said my DD becomes criminal in the few days running up to her period, but now there is so much pain it literally brings her to her knees and there seems to be no medical response.

let's keep on talking about this!

Ok, thank you. I will get a second opinion!

Yes. Def get second or third opinion. I suffered brutally with cramps bloating sore breast total exhausted during that time. Docs didn’t take me seriously. Finally after years and years of doctors. I had hysterectomy at 36 years old. It was all due to endrometriosis. Good luck. 

My daughter was always escalating during PMS, so I got her on birth control a couple of years ago, for some reason her mother wouldn't do it. It has helped..when she takes the meds, but that is another issue. Her mother has endrometriosis, so she probably does as well.

My daughter definitely escalates as that time approaches. However, birth control has not helped at all. She has little to no pain so I don't believe there is any underlying physical problem. I do believe the hormone changes contribute to her anger and willingness to lash out.

We were fortunate to find a caring gynecologist female for initial consult. The primary concern at that time was physical exam and std testing. High risk sexual behavior and sexual abuse/exploitation from that behavior are by far the most disturbing aspects of this journey. MD stated, "I usually have this discussion with a 21 year old, we are going to have it now (at 16)." The frustration is in the total and complete lack of comprehensive care. Pediatrician refers back to psychiatrist, psychiatrist refers back to gyne, gyne refers back to psych...and the circle goes on and on, with no intervention or care. Inpatient care focus is on stabilization only, until insurance benefits cut off, then and only then are you stable. As a parent I feel alone and helpless most of the time in the system. I brought up the onset of pms/menses to case manager while inpatient, as part of the escalation that landed her there. She advised to consult with outpatient provider. So, mom continues to monitor/record, research and prepare for that week in the danger zone every month, awaiting the crisis, next appointment, which ever comes first.