Wrong Diagnosis?

[stampingt1]

 

I had high hope for my DS's therapist appointment today. My hubby typed up a list of our concerns, so our DS18 wouldn't forget anything. The therapist told our son that he doesn't have BPD! Seriously!  Our son's anxiety/BPD/or whatever it is has been so bad that he hasn't been to school in a week. IMO labels don't matter at this point...FIXING OUR SON DOES! We don't have any BPD/DBT providers in our town. DS has an appointment scheduled for later this month w/ a BPD Dr  in a different city.

Has anyone else had a similar situation? Now DS is more confused than ever & totally had a huge meltdown at supper & afterwards! 

Our objective is to better understand the struggles our child faces and to learn the skills to improve our relationship and provide a supportive environment and also improve on our own emotional responses, attitudes and effectiveness as a family leaders

[FaithHopeLove]

Ugh. It must be very frustrating and confusing to have one diagnosis one day and another on another day. I imagine you are eager to find out "what's wrong" so you can know what to do next. The thing is the diagnostic process is not an exact science. I hope that you will soon have a better idea of what is going on with your son and how to help him.

[wendydarling]

That is frustrating St1and especially so as it's taken you so long to get to this point and you've shared your son is frustrated he's not being helped more by the Drs    I'd be tempted to email/call the therapist as you say he recently received the diagnosis and ask her what she said and why.

You are right the label does not matter, people present traits, comorbidities. Hang in there you've the appointment with the BPD specialist.

WDx

[stampingt1]

Per Dr's orders, we have stopped giving DS abilify. Sees local psych Dr on the 10th.

Setting up a meeting w/ at his school to figure things out since he hasn't been there in a week. The Principal, DS, DH & another person (who wears many hats) will be in attendance.

@FaithHopeLove & @wendydarling:  Thanks for the support. It means a lot.

[Only Human]

You are on top of it, ST1!

~ OH

[FaithHopeLove]

I agree. You are on the right track.

[stampingt1]

@Only Human & @FaithLoveHopeKC:  Thanks! Unfortunately, school hasn't called back about the meeting. Guess they are busy with other things since there was a huge fight there this week & had assembly to announce Prom Court today.

[stampingt1]

Hi everyone,

I see a light at the end of the tunnel! We stopped the abilify & my DS's freakouts have stopped. He missed 7 days in a row of school due to these freakouts. He was going to go back to school today, but woke up with the flu! His senior prom is in 4 days.

@wendydarling: Hubby said that therapist told him(DH) the week before that he(T) disagreed w/ the BPD diagnosis. This week Hubby will show therapist a school worksheet packet that our DS worked on. The first couple pages look totally normal. Then he just wrote unreadable gibberish. Has anyone else seen this before? Wonder if he was having a complicated migraine or was it due to BPD.  

Praying that he is able to attend at least 1 day of school this week & go to prom on Saturday. Hopefully he keeps the germs to himself. We are only children, so "not sharing" comes naturally.

Stampingt1

[FaithHopeLove]

Hi Stampen
I am happy to see that stopping the ability worked and your son may be able to return to school at least one day this week and go to the prom. That is great progress.

[stampingt1]

The light at the end of the tunnel has dimmed. We have had a very difficult few days. DS18 has recovered from the flu, but is unable to attend school due to his anxiety/meltdowns. So glad hubby took some vacation days. Otherwise, he would have had to come home from work.

This week local psychiatrist repeated a previous thought of her's that DS18 might be having temporal lobe seizures. DS has had a 1 hr EEG, which didn't show anything. Have appointment later this month to see Neurologist & discuss the 3 day EEG. Started DS on Lexapro & decreased Elavil.

His therapist canceled appointment due to his own illness. Could have really used a session today! However, I met w/ my new therapist for the 2nd time. I really like her. She has some good thoughts about my DS & myself. Saw her earlier in the week, when I was feeling better about things.

Still hoping that he'll go to prom w/ his gf Saturday night. What a rollercoaster week!

Stampingt1

[FaithHopeLove]

It is a roller coaster ride. But you are moving forward and you are doing the right thing and you are not alone. Thanks for keeping us posted.

Our objective is to better understand the struggles our child faces and to learn the skills to improve our relationship and provide a supportive environment and also improve on our own emotional responses, attitudes and effectiveness as a family leaders

[wendydarling]

Hi Stamping1t

I'm sorry you've had a tough time, that's a lot happening and with a change of meds. I hope the Lexapro brings some relief for your son, it can be a wiggly road getting the meds right. Sounds like your P is being thorough before ruling anything out is good.

Then he just wrote unreadable gibberish. Has anyone else seen this before? Wonder if he was having a complicated migraine or was it due to BPD.

I've not seen this, though can well imagine, did you receive any feedback?

How's your son feeling about the prom? Will his gf be staying with you?

Such good news you've found a T you really like, you hit gold I'm happy for you  

WDx

[FaithHopeLove]

I have not heard about writing gibberish as a symptom of BPD but it does sound like something the professionals who work with him should know about. I am pulling for you and your family.

[StressedOutDaily]

Stamping... Sending you virtual hugs...hoping he gets to go to the Prom.

~SOD

[stampingt1]

Thanks for all the support. It's really been appreciated especially this week.

@wendydarling: I think the P was blown away by the worksheet done half in gibberish. I know she said to him "What's this?" I'll have to have hubby clarify. It's hard for DS to get excited about anything these days. A teacher & us have encouraged him to go to prom. Plus he don't want to let the other couple down or his gf. She would probably "smack" him, if they didn't go to prom & post prom. Her & her parents are staying at our in laws empty duplex across town. We only have a 2 bedroom & 1 bath house. I'm looking forward to meeting gf & her parents. Have been working really hard on making our house presentable.

Praying that gf & parents have a safe trip here & that they(DS & GF) have a good time at prom!

Stampingt1

[FaithHopeLove]

I hope your son and his gf have a good time at the prom too. Has he said how he feels about it? I ask because my son was not able to attend his prom due to having gotten in trouble in school. At the time I was upset but then I realized it was my dream not his. He didn't really care about the prom.

[stampingt1]

DS & GF went to prom for a little while. Left early because it wasn't fun. Drove around instead. Didn't go to post prom due to GF having to be home at midnight.

Stampingt1

[wendydarling]

It's hard for DS to get excited about anything these days

I can understand and recognise that from when my DD was unwell. I hope DS had a nice time with his gf despite the prom not being much fun. That was a big weekend for you meeting gf and parents, how did it go for you Stampingt1?

[stampingt1]

@wendydarling:  I was worn out by Sunday. Wish they could have stayed longer. They were here less than 24 hrs. I'm sad that they didn't have a better time at prom. DH bought up the fact that our prom wasn't fun, either. I hate it when he's right.  

[FaithHopeLove]

So funny about the prom. Glad it ended on a good, if anticlimactic, note.