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Author Topic: How to support/cope  (Read 575 times)
Green2023
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« on: May 22, 2023, 11:34:19 PM »

My mother has been diagnosed with Borderline and Bipolar for around 11 years now, and she tends to go through cycles. She tends to have a few stretches of time per year that it seems to "flare up" and then after a few days, it will fade. More recently, however, life stresses have made her more aggressive and 'out of touch' than she has been for over a year.

I don't know how much detail to go into, but she has begun to more and more believe things that simply are not true, among them that my stepdad and I are conspiring against her, that he and his family have secrets meetings, that the world is going to end soon and she must prepare, and today (5/22) I was forced to call emergency services and she became enraged, because she sees it as me betraying her or trying to get rid of her.

I'm at a loss as to how to both validate her feelings but also try to work with her to get her to snap out of her delusions. I don't know how to stop being an enabler while still validating her feelings is what it boils down to. I've told her what she wants to hear multiple times, just to end the conversation. I know it's not a good strategy, but I have my own stresses to deal with and I can't deal with both mine and hers. I know she'll want me to bring her things at the hospital tomorrow, and I don't know how to speak with her when I know she'll bring things up. If anyone can give me any advice or wise words, I could use them.
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livednlearned
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« Reply #1 on: May 23, 2023, 02:59:17 PM »

Validation is more about creating a validating environment. It sounds like you're doing that, and then hitting the brakes when it's necessary.

It's more art than science with validation. I have a BPD family member who seems to see validation as a form of weakness. I realized I wasn't evening things out with boundaries. Our relationship is 99 percent boundaries with sprinkles of validation sounds (like huh, oh, wow, hmm), body language (nodding), and validating questions. I only ask validating questions when necessary.

Candidly, helping yourself is job number one. If saying what she wants to hear helps you end a conversation, then so be it. Saying something that settles her while directing her to what you want is not a bad approach. Addressing her emotions enough so you can get her to comply with something important (like calming down) might be the best you can do in that moment.

The two BPD/bipolar people in my life do not handle stress well. When they can't manage stress, they get stuck in a flooded state of heightened fear, almost terror. That's not a great state of mind for thinking clearly  Frustrated/Unfortunate (click to insert in post)

I think calling emergency services to have them take over when your mom was in that state is smart. Hopefully they'll adjust her medications and she'll be less agitated.

Any plans for how to speak to her will probably go sideways depending on what state she's in when you see her. But if you can, I would go in with a clean slate, focusing on the weather, does she have items she needs, just superficial stuff.

If she begins to go down the same path and say the same things, that's probably a sign she hasn't returned to baseline and maybe you call it a short visit and let her know you'll be back later.

Sometimes we make it harder for our relatives to return to baseline because over time we've become the source of strong emotion. It's ok to hit pause, especially if she has people around her making sure she's safe.
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TelHill
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« Reply #2 on: May 23, 2023, 03:21:01 PM »

My mother has been diagnosed with Borderline and Bipolar for around 11 years now, and she tends to go through cycles. She tends to have a few stretches of time per year that it seems to "flare up" and then after a few days, it will fade. More recently, however, life stresses have made her more aggressive and 'out of touch' than she has been for over a year.

I don't know how much detail to go into, but she has begun to more and more believe things that simply are not true, among them that my stepdad and I are conspiring against her, that he and his family have secrets meetings, that the world is going to end soon and she must prepare, and today (5/22) I was forced to call emergency services and she became enraged, because she sees it as me betraying her or trying to get rid of her.

I'm at a loss as to how to both validate her feelings but also try to work with her to get her to snap out of her delusions. I don't know how to stop being an enabler while still validating her feelings is what it boils down to. I've told her what she wants to hear multiple times, just to end the conversation. I know it's not a good strategy, but I have my own stresses to deal with and I can't deal with both mine and hers. I know she'll want me to bring her things at the hospital tomorrow, and I don't know how to speak with her when I know she'll bring things up. If anyone can give me any advice or wise words, I could use them.

Hello Green,

I know dealing with a mother with bpd is extremely challenging. My mom seems to view the world with a distorted lens.  She's had problems all my life. The one overarching belief she has told me over and over again is that no one likes her. The cause for this goes between she's inherently no good or the people near her are stupid,  ugly, lazy. She rages and is agitated about this almost always.

People with bpd have a distorted world view. They don't see things like us. Presenting them with logic won't make them normal. It is the way it is.

You may want to validate that you hear her by saying I understand, that's too bad, or ok. My mom wasn't too happy when I started validating her without trying to fix it or argue with her. I kept repeating it calmly.  She does stop for a while and calms down.Then she'll complain to my dad or brother.  It's exhausting and I cannot be with her for long stretches of time. I realized that things will be the same for her whether I'm there a few hours a week or all the time as long as she has a safe place to stay and is looked after.

Telling my mom what she wants to hear has backfired. She remembers what I say. She gets angry when she knows I've lied to her. It creates more rage.

You may want to check out the links in the above menus for tips and tricks or the link in this forum -Building a Healthy Life Around a BPD Parent or Family Member.

Your mother  also has bipolar disorder and that has its own issues as well.



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Methuen
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« Reply #3 on: May 26, 2023, 07:36:59 PM »

 
Excerpt
I was forced to call emergency services and she became enraged, because she sees it as me betraying her or trying to get rid of her.

Yep.  This is how they see it.  

Here's my example: We have a lovely assisted living facility here.  There is a waiting list of almost 300 people wanting to get into it, because it's such a great option!

My mom sees anyone (friends or family or health care workers) who speak with her about assisted living, as "wanting to stick her in a home to die".

My mom is 87, and has lost vision, hearing, mobility, and smell.  She has multiple chronic and serious diseases (heart disease, strokes, Parkinson's etc), and is a huge fall risk.  She is clinically frail.  Suffers anxiety, depression, and uBPD.  We think she eats ice cream 3 meals a day.  Or crackers.  She still lives independently in her home.  She has cancelled home care she was receiving after falls and during recovery.

What I can say is that it took me a very long time to just accept her the way she is, and accept that I couldn't change her faulty thinking.  The distorted perceptions of a pwBPD are a disease.  We can't make that go away any more than we can make any other disease go away because there are no magic wands.

"Meet her where she's at", or you will bloody your own head banging it against the brick wall which is her.

Nothing you do will get her to snap out of her delusions.  She has to find her own way out of her mind frame.  Or get medical help.  You can't solve this for her.  I know it feels like she's probably make it your job to fix her, but it's not.  She's an adult.  If she's a risk to herself, or if she's having hallucinations or delusions, speak to a doctor.  These are medical problems, not daughter problems.  

You mention that you want to validate your mom without enabling her.   Doing the right thing (click to insert in post) There's a really good section in this website that talks about "don't validate the invalid".  Maybe you are already familiar with this, but if it sounds like something you might be interested in reading, you could type it into the BING search on this website.  It will take you right to the article.  I have read it many times over the years.  Very helpful, and I seem to continue to benefit from rereading for reminders.

Out of curiousity, how old is your mom?  Have you noticed any changes in her cognition?  Sometimes as they age, they get more paranoid, but it sounds like your mom has plenty going on already without the aging factored in.

By the way, I've called the ambulance 3 times for my mom.  She wails "I just want to die!"  Her emotional disturbance is so very acute and outside of any range of "normal"...  And yes, it's always bad that I call the ambulance, even though she's having an apparent heart attack (which turned out to be angina), or she's had a fall.  She once had a fall under a plum tree, didn't admit to it until days later when she called me in pain, and I took her to the hospital to be checked out.  I wasn't even at her house when she fell under that plum tree, but somehow the pain resulting from that fall was my fault.  It came out in a terrifying rage directed at me.

 
Excerpt
I don't know how to stop being an enabler while still validating her feelings is what it boils down to. I've told her what she wants to hear multiple times, just to end the conversation. I know it's not a good strategy, but I have my own stresses to deal with and I can't deal with both mine and hers. I know she'll want me to bring her things at the hospital tomorrow, and I don't know how to speak with her when I know she'll bring things up. If anyone can give me any advice or wise words, I could use them.
 Are you familiar with SET?  (Support, empathy, truth)

You: Hi mom.  How are things today?

If she's emotionally dysregulated still, distracting her with a gift (my mom likes ice cream cones) and conversation over simple neutral subjects would be my suggestion.  Make the first one a short visit so it ends before it goes off the rails.

If you think her emotions are settling down, you could try SET.

Her: blah blah blah

It sounds like it's been very difficult for you. (support-you can give more specific details than "very difficult").
I can see you are frustrated mom.  I think anybody in your situation would be frustrated.  (Empathy)

The doctors say...  (truth).  I brought some things I thought you would like.  Is there anything else I can bring to you?

The longer she stays in the hospital, the more likely the staff is to see her behavior and her delusions.  That could be helpful for both of you.

You could also consider "confidentially" discussing any concerns you have with her doctor to give him/her your insights. If what you want to discuss is something you want to remain confidential, be sure to discuss the confidentiality piece first.  

I'm kind of stabbing in the dark here with suggestions, so what some of us have done in the past is post concrete examples of what the pwBPD is doing/saying into the thread, and then other members suggest possible responses.  It's worked well for a lot of us.  There's so much experience and wisdom on this forum, and people willing to help.  It's always easier to come up with good rational ideas when we're not the one in the eye of the hurricane.  In that way we help each other.

Most importantly here, is to look after yourself.  Your mom is being taken care of in the hospital.  Are you finding ways to also look after your own well being during the chaos?

« Last Edit: May 26, 2023, 07:46:14 PM by Methuen » Logged
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« Reply #4 on: May 27, 2023, 10:52:36 AM »


You could also consider "confidentially" discussing any concerns you have with her doctor to give him/her your insights. If what you want to discuss is something you want to remain confidential, be sure to discuss the confidentiality piece first.  


YIKES!  I tried that. It was a disaster from which I will never recover.  My mother was having serious "episodes" of dissociation and raging, and there were some other issues, so I contacted the dr. to ask her to do an assessment to see if medication and/or additional care could be arranged.  I was clear about the need for confidentiality, but my mother found out that I initiated the dr. appt. and I will never be forgiven.  I had previously tried to get her to go with me to her dr. to talk about these issues but she was not willing and the situation was unmanageable.  I am not sure if she remembers these episodes that she has because she denies that they ever occur.  Anyway, be careful and get reassurance about confidentiality before trying this out.
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livednlearned
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« Reply #5 on: May 27, 2023, 11:11:07 AM »

My waif/hermit BPD grandmother, now deceased, became paranoid toward the end of her life, too. She accused a neighbor of breaking in, taking her good lettuce, and replacing it with bad lettuce  Frustrated/Unfortunate (click to insert in post)

She was a hoarder at that point and her living conditions were dangerous.

I'm not sure exactly how it came about, but someone called social services and that triggered government care no one knew existed. It meant having my grandmother more or less forcibly removed from her home but her living conditions were untenable by then and she was calling the police so often they formally notified my uncle they would no longer respond.

My uncle, the child living closest and the one most involved in her care, was in a low contact phase and not running interference for her. That allowed natural consequences to play out so more sunlight was on her situation. Instead of reporting stolen lettuce to my uncle, the police were called. It's possible they were the ones who engaged social services and from then on she had a team of people and appropriate living facilities. My aunt who had been estranged reappeared and began visiting. I think the change in environment and distraction of the staff made it feel safer.

People like me and a lot of people on this site tend to over function. A lifetime being trained to caretake people can make it hard to know when it's better to let natural consequences play out. Sometimes I feel physically sick when I don't intervene.

Not everyone will have the outcome my grandmother did (she was in Canada) but I think the takeaway stands. It took me a really long time to allow natural consequences to occur because I take on responsibility when it's not really mine to take, and feel guilt and obligation disproportionately.

One the things I use to help guide me with difficult people is making sure I have a full cup before engaging with them. I can interact with lots of regular people when my cup is half full and even empty. Not with difficult people. If I can't avoid interaction then I limit my time. Every minute drains what's in my cup. Better to go in with a full one than go in empty.






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