Dear Going Places,
I'm so very sorry for everything you are suffering. I expect that many, if not most, of the parents here will completely understand the grief and guilt. Is that what you're feeling? It is crushing, and I'm so very glad that you're looking for support.
Thank you for your compassion.
Grief, yes, guilt, a little, helpless for sure.
I was in much the same place a few years ago. My daughter, uBPD30, is also low-functioning. I found that most counselors, when I explained my situation, would simply roll their eyes when I mentioned "BPD." The place I found the most help was with a DBT counselor. He was the most knowledgeable about the science behind BPD, and also understanding about the disorder.
My oldest, I will call her "K" talks to the youngest, I will call "A".
I will have K ask A if she is seeing a DBT counselor.
After her stay at the hospital, they assigned her a Social Worker and Counsler.
She does (ok, she SAYS) she is "officially" diagnosed as BPD.
Which books, if you don't mind sharing, did you find to be helpful? The ones that made the most sense to me were "Loving Someone with BPD" and "Overcoming BPD." Some of the other books only made me more angry with my daughter... .not helpful at all. I was angry enough!
Stop Walking on Egg Shells by Paul Mason and Randi Kreger is what I have now.
The Essential Family Guide to BPD (spelled out) Randi Kreger
I've read is that the science of BPD is years behind the research for other mental illnesses. I hope that someday they will know more. For now, it helps me to remember that for a very long time, the blame for schizophrenia and even autism was placed on the mothers. And that turned out to be entirely false. There has been no gene identified as the cause; experts seem to believe that our kids are born more sensitive or emotionally vulnerable than most. Think how parents can have 2 children, raise them the same, but only one develops BPD.
I have 3.
My oldest, 26, my son 25 are fine.
My 23 year old is the one who suffers.
She was very sensitive as a child. She was ALWAYS my challenge.
I 'thought' she was just following a 'bad example' in her behaviors, as A LOT mirrors her father.
The more I read, the more I wonder.
One thing that I've heard repeatedly is that we may never know how we got here, what actually caused it, but we have to find a way to deal with it. Any guilt will only add to your burden, and it's heavy enough. I found peace with my own guilt by practicing Radical Acceptance (info available on this site or in the books I mentioned), which allowed me to suffer without so much pain, and then I was able to turn to my spiritual beliefs for true comfort.
Hope something I've said is helpful.
Hugs to you,
Slipping
Jesus is my Rock. I would be dust, without Him.
My guilt lies in a few places... .none of which I can do anything about today, except ask for forgiveness and not repeat.
Thank you so much for your reply.