Assisting BPD with terminal illness

[Cre8tvspirit]

I have recently become the primary caregiver for my BPD half sister that is also dealing with end stage brain cancer.  The rages and unpredictable behaviors have created huge obstacles in getting her the palliative care she needs and we are now looking at the real possibility that she may be discharged from hospice services because they are not able to accommodate her special requests.

Normally, I would step away, let her figure it out on her own and just take care of myself, but she truly can’t at this stage of her life.  I am at wits end trying to navigate this minefield.  Has anyone dealt with this type of situation?   

Our objective is to better understand the struggles our child faces and to learn the skills to improve our relationship and provide a supportive environment and also improve on our own emotional responses, attitudes and effectiveness as a family leaders

[wendydarling]

Hi Cre8tvspirit

I'm so very sorry how difficult this is for you and glad you've reached out for support of members here. If the hospice are considering discharging, can they share what normally happens for these patients, are there special facilities?

You are a wonderful sister.

WDx

[Tinkerbelle]

You are doing your best in a painful situation. Having been a Hospice nurse, I know most have chaplans ,all have social workers and some even have massage and music therapy.I think a care conference is a reasonable request ( you/your supportive family and care providers)Maybe aromatherapy, music and better pain or anxiety medication changes could help. If not maybe another hospice?
I am so sorry you and your sister are going through this.